Music in the Gardens and Crohns and Colitis UK

On Saturday 4th July I went along to Music in the Gardens, a music event in Sheffield by The Rotary Club.  I went not only to listen to the wonderful Proclaimers but also as a representative of Crohns and Colitis UK – South Yorkshire to shake buckets and sell programmes in order to raise money for my favourite charity!

It was a fantastic event that is now in it’s 10th year, each year the club choose charities to support and we were over the moon to be chosen this year.  Set in the gorgeous Botanical Gardens in Sheffield, the event was sold out and filled with music lovers who filled the space with blankets and picnics for an evening of music and charity.

crohns and colitis charity sheffield

 

I took along my husband Timm and eldest son Charlie to help out on the night, along with CCUK members Cherylyn, Ryan, Ruth and her partner and we had a brilliant time, all the event goers were really generous and lots stopped us to talk about either their own dealings with IBD or those of a family member or friend.  It was great to get to chat face to face with so many and I even got recognised as “that bad ass girl” – Fame!!!

 

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We raised £769.06 for Crohns and Colitis UK and couldn’t be prouder!

Sam x

Excuse me! I am here!

I am well aware of the Everyday Sexism project and applaud it’s work in giving an outlet for every woman to share instances of sexism in their lives.

“The Everyday Sexism Project exists to catalogue instances of sexism experienced by women on a day to day basis. They might be serious or minor, outrageously offensive or so niggling and normalised that you don’t even feel able to protest. By sharing your story you’re showing the world that sexism does exist, it is faced by women everyday and it is a valid problem to discuss.”

I identify loudly and proudly as a feminist and I see the issues around inequality on a social scale; the pay gap, victim blaming and many other issues.  It worries me for my daughter and future generations, but on a personal scale I can say that I rarely have instances of sexism in my day to day life.  Perhaps that is because I work from home in an office with my husband, perhaps it is because I am confident and strong willed and others would see that I would call them out on it? Or perhaps I just don’t notice.

So it was a shock to me when I had an experience where my gender became an issue.  This year I have been working for a few different clients, sometimes alone and sometimes with a colleague.  On some occasions I was working with a male colleague in a situation where I was leading the project and he was learning on the job from me and this is where it all got a bit odd…

We entered the workplace and found the person we needed to see, I introduced us both and the company and put my hand out to greet them.  This person turned away from me to my male colleague and said hello, she then addressed all her questions towards him.  He told her that I was “the boss” and he was there as an extra pair of hands.  She seemingly ignored this and continued to address him over me for the entire day.

Now, I suppose there could have been other reasons behind this, but it very much felt that she assumed as he was male, he was in charge.  I let her know that I was leading the project and any questions she had, she should let me know and I would address them.  I am a friendly and open person, so I can’t imagine that she had taken a dislike to me.  It was all very odd.  We laughed it off and the day continued.

Only the following day, it happened again! Are we really so ingrained in a male dominated culture that we can’t imagine an event where between a male and a female, the woman is in charge?

Another time, we were staying at some accommodation.  I was driving (my male colleague can’t drive), and also towing a trailer.  As we arrived at the hotel, the owner came out to greet us, he went straight to my male colleague and spoke directly to him, despite the fact that I had booked directly with him and all correspondence came from me.  He then showed us where to park addressing my friend, he was told that I was in charge and I was the driver.  It was at this point that he asked me if I would like him to reverse the car and trailer into place for me!

HahahHAHAhahAHaaaa!! (That’s a manic laugh…)

 

laughing mum and son

Charlie and I think your sexism is hilarious…

 

What is funny (odd, not haha) is that I actually feel uncomfortable sharing these events, I feel that others will think I am making something out of nothing, that I am imagining the worst and assuming sexism.  Perhaps these people were “traditional” or “courteous”.

Or perhaps we are so deep into a culture where it is assumed that women aren’t the boss and can’t drive that it is seen as acceptable to act like this?

Don’t get me wrong, I know these events are so minor in the grand scheme of things, they were a tiny irksome point in my day, nothing compared to the huge scale inequality going on in other parts of the world.  Nothing compared to women who are verbally abused in the street, sexually attacked, nothing compared to those fighting for justice for women.

But it is these little things that make up the day to day sexism that we live through.  There are stories today about female only carriages on trains, an idea based on making women safer as they travel.  This kind of act puts the responsibility to deal with harassment or assault onto the victim instead of the perpetrator where it belongs.  It is another aspect of a victim-blaming culture of ‘why didn’t she keep herself safe’ rather than ‘why did he harass/assault her’.  I really don’t think we should be “shaming women into limiting their environments, but focus instead on teaching men not to degrade them.” (Via everyday sexism Twitter)

I am aware that the remarks by Jeremy Corbyn were based on him saying he would like to open a dialogue about safety on public transport and came from comments from women to him (I am actually a big Corbyn fan!) and also that this idea is one about immediate safety whilst the issues of public attacks on women is addressed, but what a sad world we live in where women can’t feel safe just getting the tube home from work.

Often the response to women who point out inequality is that men are just trying to help, the old ‘we can’t even hold a door open any more’.  That’s just silly, please do hold the door open for me if you see me coming, but not because I am a woman, just because it is a nice and polite thing to do, I hope you do it for everyone.  I am happy to ask for help if I need it, I am not ashamed if I can’t do something and will ask for assistance, but please don’t assume that I need help because I have a vagina. Don’t assume I’m not the boss because I have a vagina. Or that I can’t drive.

In fact, that is probably a good rule of thumb…

Don’t assume anything about me because I have a vagina.

 

 

Sam x

 

 

Distance

Apologies for not being about much over the past few weeks, as much as i adore blogging and writing for So Bad Ass, as a mum of three I have to ensure bills can get paid and and so I have been super busy with other work.  It has been pretty lovely work though I have to say! I have been working as an artist for arts group Responsible Fishing UK running their creative workshops at Haven sites all over the UK, the project is called Camp Cardboard and entails hundreds of cardboard boxes and working with kids to transform huge spaces into giant dens/castles/boats/zoos/FBI headquarters/shops/homes/prisons, basically anything the children can imagine!  It has been brilliant fun but has meant quite a bit of time away from home, Timm and the kids.

My husband Timm is a director for Sheffield music festival Tramlines, which means that his summer has been jam packed with preparation and running of the event.  These things mean that our kids have been super busy and passed between the two of us as we attempted to resolve all childcare over the summer holidays.  We are ever so lucky that all our jobs are freelance, versatile and child friendly and on most occasions they can come along with one of us.  I am ever grateful to my mum who picks up the slack when we can’t make it work.

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And so I suppose today’s post is about distance, both a physical distance and an emotional one.  Timm and I both have what we laughingly call Portfolio Careers, this basically means we are both freelance and work our butts off at any job that comes in! Timm is a photographer, he runs Responsible Fishing arts group, he is both director and main stage organiser at Tramlines and he teaches at a university for their Music Industry course.  I write for publications and websites, work for RF, help run the photography business, do public speaking and I am writing a book!  This makes for crazy scheduling but it does mean that we both work from home and both have time with our children and eachother.  Honestly, we would both like it to calm down some, the manic diary planning and time away from each other is hard going and we would both like a little more time.

I am not complaining.  Two years ago when I had my first surgery I couldn’t imagine how life could be something good, I was so low, so physically and emotionally broken.  I felt like I was in a black hole.  And so for now to have the physical ability to be working and traveling and doing things that I love, it is a real blessing.

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The events of my life have made me a pretty tough cookie, yet I realise that my emotional strength relies very much on a connection with my husband.  I can get through ANYTHING as long as I have him with me in my heart.  I know this sounds so corny and feel free to make vomiting noises whilst you read, but after everything we have been through, our relationship has just solidified, our bond is so firm now and the connection between us is better than ever before.

So when we have weeks on end where one of us is working away, when the free days are spent heaping time and love on the kids as we deal with the working parent guilt, when we both have so much on our plates, it is so easy to feel distant and alone.  We have had lots of day to day stresses of late, cars breaking down magnificently, bills to be paid, plans to be laid and so time has been spent on all those rubbish grown up things.  The physical distance is one thing, but we have both had an emotional distance too as we both just try and wade through all our work load.

Through writing my book, I am churning up lots of feelings and emotions about my past, I feel quite fragile right now as all these events from my past come floating up to the surface and I have to deal with them all over again and this is really adding to my anxiety levels.  I am so chuffed to be writing the book, but I had not planned at all for this tsunami of feelings that it would bring with it!

Last week we finally got time to sit down and have a proper chat, we both talked about how little we have seen one another and how we felt we hadn’t connected properly for weeks. (Not a euphemism!!) Isn’t it amazing how a good talk can make everything feel a million times better?  The darkness and anxiety I was going through lifted immediately when I was with my boy, my shoulders raised and my head cleared when we had the time to discuss all that was going on.  Life just feels better.

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It is so easy to get caught up in life.  In all that adult, grown up crap that none of us really want to be dealing with but we just have to.  It is so easy to get into a rut, to go day in, day out in a monotonous grey drabness.  It is so easy to get so deep into your work that you forget to look up and see the colours around you.  So this week, take a moment, look around you at the people who matter.  Go for a walk with your kids, have a nice meal with your partner, go out with your friends.  Do something to reconnect with the most important people in your life, do something to close the distance that the boring stuff causes.

This week, go do something beautiful with someone wonderful.

 

 

Sam xxx

 

 

National Diversity Awards – I got shortlisted!

I am thrilled to say that I got shortlisted for the 2015 National Diversity Awards as a Positive Role Model in the category of Disability!!  The winners will be announced Friday, September 18th at Liverpool’s Anglican Cathedral at a lovely awards do that I will be attending along with Timm as my cheerleader/chief tissue holder!

I am absolutely blown away to be shortlisted, I felt like a winner just being able to read all the amazing comments from everyone who nominated me.  Shall I tell you a secret? I have them in a file on my computer and on those days when everything feels too tough, when I want to hide away and not speak to anyone, I read them and remember why I do what I do.  Why I write about the most intimate details of my life, why I keep going.  You lot are just the best readers in the world, the responses I get on here, on Facebook, twitter or by email just mean the world to me and I want to take the time to thank every one of you.

“The National Diversity Awards ­ a prestigious black tie event, which celebrates the excellent achievements of grass- root communities that tackle the issues in today’s society, giving them recognition for their dedication and hard work.

The National Diversity Awards will be held at Liverpool’s Anglican Cathedral, September 18th 2015 where there are several award categories including Positive Role Model and Community Organisation Awards, which will be split into five categories including race & religion/faith, age, disability, gender and LGBT. Other awards include the Entrepreneur of Excellence Award, Diverse Company of the Year Award and Lifetime Achiever Award.

Charities, role models and community heroes will be honoured at the ceremony showcasing their outstanding devotion to enhancing equality, diversity and inclusion; thus embracing the excellence of all out citizens irrespective of race, faith, religion, gender, gender identity, sexual orientation, age, disability and culture.”

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Poo is a difficult subject, but it is the thing that I talk about the most and what spurred me to start this blog.  To speak out for the 300,000 people in the UK with Inflammatory Bowel Disease and to Stop Poo Being Taboo.

From there I began to think about all the invisible disabilities that people face and the isolation and anxiety that comes with it.  As  a society we are getting better about talking about disability, but there is an awful lot more to be done, especially for those who have a condition that can’t be easily seen.  And that it why I started the More Than Meets The Eye campaign, to get people talking about invisible disabilities.

I am really proud of all that I have achieved so far, but I would love to make a difference to so many more people.  Of course, I would love to win this award, but I already feel so blessed just to be acknowledged amongst the amazing people who have also been shortlisted.  Winning would be a bonus, right now I am just overwhelmed that this girl from Sheffield has done something to help so many.  Two years ago as I lay in a hospital bed, feeling that life as I knew it was over, I couldn’t have dreamt where I would be headed.

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Thank you so much to every one of you who voted.

You’re all awesome

Sam xxx

 

 

 

10 GREAT things about life with Inflammatory Bowel Disease

We all know that life with any chronic, lifelong illness sucks,  when that illness is Inflammatory Bowel Disease in the form of Ulcerative Colitis or Crohn’s Disease, it is shitty! (Pun definitely intended).  I am as guilty as everyone else in writing about all the negative aspects of this, I have spent two years doing just that, but I thought it time to write about the great things…

 

1. Regular new underwear.  Well, when you end up abandoning pants in sanitary bins because you shit yourself, you have to replenish the stock! Make it some nice ones.

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2. You know more about the workings of the digestive system than most people.  Including doctors.

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3. You sound like you’re carrying maracas in your bag due to all the meds rattling around.  Make the most of it and shimmy as you walk.

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4.  You become the Poo Oracle of all your friends.  Revel in the power of knowing about all your mates poo stories.

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5. You know your way around your local hospital and so never get lost.  You have been in most wards at some point, you could draw a map!

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6. You have an excellent excuse to eat crap, beige food when you are in the mood.  Yes, you need a mcdonalds, everything in there is on the low residue diet!

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7. You have a sense of humour.  Sometimes sick, sometimes inappropriate but when you have been through so much, you have to learn to laugh or you would cry.

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8. People get so used to you looking rough that when you are well and scrub up, you look amazing and people comment.

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9. You have the ability to teach those around you.  About illness, invisible disability, compassion, love and positivity.  Use it.

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10. You know that life is precious.  You have been through hell and are still standing! You know that no matter how tough life is, it is ALWAYS better than the alternative.

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Sam x

 

To the father who left,

When you and mum split up, I was just a baby and don’t actually remember you ever living at home with us yet your presence, or lack of it, has still managed to affect my life greatly and I want you to understand how your actions have ripples throughout the family you walked away from.

For a girl to grow up without a father who cares, or even a father figure, it is tough.  No matter how strong I think I am, there is always a part of me who is a frightened and sad little girl who just wishes her dad loved her.

There is a photograph of me as a small child, I am sat in the bay window of my childhood home with the sun shining through, dressed in a cute 80’s outfit and sporting a dodgy fringe (thanks mum!), it is a lovely image yet one that is tainted with bad memories.  For when I look at that photo, the memories of sitting and waiting for you to turn up to visit come flooding back.  With my bag packed and hair brushed, I would sit and wait for you to arrive, looking up and down our quiet street, listening out for the knock on the door, but so many times that knock didn’t come.  You let me down so many times that I lost faith in you.

Then there were all the times that I was brought to your home by my eldest sister, taking on, as she has all her life, the responsibilities that did not belong to her.  She would take me to visit your new home, your new wife, your new daughters.  Everything in your life was shiny and new, not like the tainted old daughters you left behind.  Your second wife was very kind, she had to be to care for me during those visits, the times that I was supposed to be spending time with you was usually spent with her.  And years later as I stood by her coffin alongside the half sisters I hadn’t seen since childhood, I would tell her a silent thank you for the care she gave to me.  As yet again, the women in my life picked up after your failures.

When I was a kid, this mean girl in my class told me that I must have been so ugly and bad as a baby to make my daddy run away.

Doesn’t that sound like a throwaway nasty comment? A spiteful child’s bullying words.

Yet on those dark days when the demon voice inside starts to tell me I am not enough, it is those words I still hear.  As a little girl I believed it must be my fault, perhaps if I were better, quieter, whiter, more like your new daughters, maybe then you would love me?

Don’t get me wrong, I am not the sort of person to allow my past to ruin my future.  I am a strong and confident woman who is happy in life, but these things from childhood do run deep and I still find myself wanting to please those around me in the hope they will love me truly and not leave.

I am a strong woman now despite you, not because of you.  You don’t get to take credit for me.  And I see you doing that.  Telling your Facebook friends, your born-again church about my accomplishments and it angers me because you don’t get to warm in my glow.  You lost that right a long time ago.

You soon left another family, leaving more children in your wake and went onto wife number three.  She didn’t want us around and so you disappeared.  The sporadic contact became nonexistent and I was left bewildered and frightened, wondering what I had done, believing I must be a terrible person for my father to simply go away.

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I understand that life is difficult.  Relationships change, people face addiction, communication can be tough.  But you made choices based on those things that meant I was the one to suffer.  I have never known how it feels for a father, or father figure, to love me.  Never had the opportunity to be a daddy’s little girl, to have a dad to guide me, worry about me, care about me.  I find it hard to trust that men aren’t going to treat me badly, I wonder whether my husband will one day have had enough and leave me.  I have a wonderful husband who loves me and our children, who supports and cares for me, yet that demon crops up from time to time to whisper in my ear that if my own father couldn’t love me, how on earth will my husband?

A few years ago, you reappeared.  Facebook has a lot to answer for and you got in touch, wanting to reignite a relationship whose embers had faded 20 odd years previously.  I decided to give it a go.  Not for you, but for me.  Because tragically, despite everything, I desperately want to be loved.  I want to join in with my friends who talk about their dads who are their heroes, their dads who they go shopping with, who come for dinner, who they holiday with.  I wish I had tales of my dad coming to my rescue, of feeling protected and safe when in the arms of dad, of being someone’s special child, a daddy’s little girl.

I tried.  I swear I did.  I told you about all the pain you had caused me, of how your decisions had broken my heart, I opened myself up and poured out the years of rage, hurt and disappointment.  I allowed you into my life so I could show you the emotional battering I had taken because of you.  I told how sorry I felt for you, that you had gone through your life abandoning children at the wayside and now in your senior years you were alone.  I told you about my beautiful, amazing, intelligent and wonderful children who you had missed out on and that the title of grandfather was one that was earned not given.

You told me “Jesus forgave so that you can forgive”

That was the moment that I realised that you hadn’t changed.  You weren’t taking responsibility for your failings, you had just found a way to absolve yourself of your sins and expected us all to rejoice.

I am not giving you that.  I don’t forgive you.

The opportunity to tell you all the ways you had fucked up gave me a release, I thought perhaps I could find a way to have some relationship with you, perhaps not as father and daughter but maybe as friends.  But I soon realised that you don’t have the credentials to be my friend.  You aren’t worthy of me. My friends, the people I have in my life are awesome, they are full of love, respect and loyalty.  They are interesting, funny, caring, special and they bring joy and laughter to my life.

You hide behind people and things who allow you to not take responsibility for yourself.  Children, women, alcohol, a higher being.  But at some point you need to accept that you have wasted your life and the opportunity to have me as a daughter.

Because I am fucking awesome.

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In the end, I walked away not through hate, not through pain, not through fear.  I walked away because I couldn’t find the passion in me to hate you or love you.  I had no feelings, a numbness, a malaise, a disinterest.  There was nothing about you that was intriguing or interesting, I didn’t want you as a father or as a friend.

This is me drawing a line in the sand, I do so without the shame or embarrassment that I usually feel if I think I am letting someone down.  I am always trying to make people happy, yet teaming that desire with a hard shell.  This interesting mix of wanting to please yet feeling I have to be defensive and ready for disappointment.

I am giving myself permission to move on, to not look back and to be happy as a fatherless woman.

 

Sam x