Update

Just thought I’d do a quick update as I’m getting so many lovely messages asking how I’m doing. 

I saw my consultant Mr Brown today, he did pouchoscopy and is happy that my pouch looks healthy! So the meds last week must have done the job. 

With regards to the prolapse, he had a look and agrees there is a definite prolapse in my vagina and has referred me to a gynae doctor to get it sorted. 

The pouchoscopy was fine. I was so nervous before my first one but just want to assure those who may be facing it that it was much easier than any colonoscopy I had with a colon!  They use a much smaller camera and it’s quicker and far less uncomfortable.  I felt no need for the sedation and though there’s discomfort in the air they pump through, the procedure itself is much easier.

  

The staff were lovely, they’re kind and reassuring. I told the staff nurse about my blog and he asked I would be writing about today. He asked for a name check if I were going to be nice and I feel terrible that I forgot his name already!! (*waves hi if he’s reading!) But the staff at Northern General endoscopy unit are all fantastic and make an embarrassing procedure a lot easier to deal with.  So huge thanks to them all. 

Thanks also to my mum for taking me and bringing me home as Timm was teaching today so couldn’t be my usual hospital buddy. 

I’m still feeling quite emotional, the prolapse thing has really thrown me and my head’s all over the place.  It was good to see my regular doctor, Mr Brown, he is so lovely and you know you’re not just a name to him. He saw my tension and said I looked upset and not my usual self. It meant a lot to know that he notices these things and actually cares. 

After my last post, I was very nervous about what sort of response I would get. I was scared I’d overshared. But your messages have made me weep. Those of support and those of thanks and gratitude that I had spoken out about something that had affected them too. Those messages make everything worthwhile, to know I’m helping others gives me the strength to keep writing.  So thank you all, you wonderful readers that give me your time, your thoughts and your support. You’re all awesome. 

I’m writing this tonight, unable to settle, I’ve some tummy pain after the pouchoscopy but also with a head swirling with thoughts.  Many are dark thoughts, but I’m blowing them away with the strength of a child blowing out their birthday candles, and the wish I’m making is for the strength to get over this blip, for the courage to keep fighting and for the continued support of this worldwide gang of bad asses! 

So I have little news, I’m waiting for the appointment with the gynae team and we’ll go from there. I did have one thought though that made me giggle… 

  

 

Well you have to find the funny somewhere, eh?!
Sam X 

2 replies
  1. Dave Pawson
    Dave Pawson says:

    First, Timm, that second photo is brilliant!
    Second (sorry Sam), glad to hear you’re relieved if not totally better. Sounds good for a recovery!
    Hope it’s speedy.

    Reply
  2. Nit
    Nit says:

    Hi Sam,
    I have followed your blog for a while and I’m so sorry you’re going through such a horrible time, but glad that you are getting prompt help for it.
    I’d just like to second you in your positive comments on the endoscopy staff at NGH. I had a flexi-siggy there a couple of weeks ago and a colonoscopy there 4 years ago. They have always been such lovely people who have helped make a grotty day that bit better because of their understanding of the patients’ side of things.
    I have Crohn’s colitis which presents very like UC and I totally identify with the “OMG if I don’t get straight to the loo now I will cack my pants!!” situation. Your campaign about being non-judgmental about invisible disabilities has helped me to feel more assertive about using the disabled loos if there is no other immediate option. It may also have influenced the lady behind me in the loo queue in M&S who saw my panic and discomfort and actively encouraged me to use the disabled loo rather than struggling to wait.
    I really hope you will get to see the gynae team very soon so they can reassure you that they will be able to return you to your bubbly self again.
    Best wishes, and thanks for the fabulous blog and for speaking up for us poopy people!!

    Reply

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