Good news and bad

Last week I had some good news from the gynae hospital.  I’ve had a large cyst on my ovary that been monitored for a few months, along with some worrying blood test results, there was a concern about ovarian cancer.

I’ve been given the all clear, the cyst had gone down, the blood test results a lot closer to normal so it’s all great news!

Then this week I met with my new surgeon Mr Adams, I’ve been referred to him by Mr Brown as he deals with more complex abdominal cases so Timm and I went to see him yesterday.

We looked at my scans and he went through my history and said that he would operate. This I was expecting, I have one large parastomal hernia and one hernia in my old stoma site so I knew that surgery was definitely on the cards.

What I wasn’t expecting was just how complicated and high risk it was going to be. Because of having so many surgeries, the multiple hernias and the sheer size of the parastomal hernia, he says it is going to be very complex and difficult.

I have a 75% chance of complications, this is really frightening.

Ill need a 1-2 week hospital stay and 2-3 months off work recovering.

I was in shock and had a bit of a cry, it’s all just a bit overwhelming and scary right now, I am terrified that I’ve used up all my luck and this is going to be the one where it all goes tits up.

Yesterday was a bit of a blur, I cried a lot, shouted at the sky, said it’s not fair. It all just feels very real now, and hearing those odds of things going wrong has put the fear in me. Though I can reduce that by 10% by stopping smoking or going onto e-cigarettes so yesterday was my last fag and today I have a big stupid vape thingy!! But needs must!

Today I’m a bit less emotional, certainly less weepy. But deep down I’m just scared.

The thing is that it’s not the surgery itself that scares me the most, it’s the recovery and the fear of more god awful nurses who won’t follow instructions and give me the planned pain relief. The last hospital stay was a nightmare with two of the most uncaring, horrible nurses I’ve ever met who left me in agony for over an hour after my epidural was switched off (you can read about it here.)

Whenever I think about surgery, it’s this moment I’m taken back to, this feeling of panic, pain and the complete free fall of no control and I panic. My chest tightens, I can’t catch my breath, my head spins and I feel like I’m right back there. I’m so scared!

And so the thought of having 2 weeks in hospital, potential complications, a big old cut in my belly, potentially another stoma move and then months of not being able to work, of needing so much rest, it’s just too much.

Because I had two surgeries last year (and a handy mental breakdown) I have no more paid sick leave left at work and so although they are really supportive, financially it’s a worry.

Timm says that whatever we need to do, we will, that he’ll look after me, to forget the money, that we will get through it together, that he’ll be with me every step and won’t leave hospital till he knows pain relief is sorted.

I also know we have some wonderful friends who will be right by our side and so that makes me smile.

But all in all, this is a bad time, I paste the smile on but underneath I’m absolutely done in, scared, weepy and upset.

Will update when I’m feeling brighter

✌🏽& ❤️

Sam xx

 

3 replies
  1. Kerami Roberts
    Kerami Roberts says:

    Well, complicated post Sam xxx thanks for updating on your blog. So pleased that your ovaries are in tip top health, and that surgery is possible.

    That is a hard time.

    I wo der if there’s anything you can do in advance in terms of nursing care…. I can empathise with that as when I had Emily I ad complications and some nasty midnight midwives who refused pain releif with no understanding of my chronic condition… Scary biscuits.

    Does scope have bay advice in this respect? How to cope in hospital etc?

    Anyway. Easy to say but finances will get sorted as will work… Hard I know…

    Hang on to tat positive. Its OK if that smile pasted on comes down and you need support xxxx

    Super doopa hugs xxx

    Reply
  2. Laura
    Laura says:

    Hello, Well yes, good and bad. Who wouldn’t be nervous? I don’t know if newbie resident doctors will be caring for you too but just tell your new surgeon to make sure they know to keep you comfortable post-operation because it is a complicated surgery.
    In terms of the smoking challenge, the Mayo Clinic article “nicotine dependence” is good–lists the RXs approved in the US. They offer a free online support website called Become an ex.; worth checking out. I think some kind of outside science-based support would help a lot. I’m pleased that new surgeon has taken your case and will bring new skills and eyes to do some needed repairs. You have youth, family, and spirit on your side as well so there is much to be hopeful about with regard to the hernias and pain. Plus your national health system!

    Want to escape into a memoir? I just finished “Educated” by Tara Westover. She grew up in a survivalist Mormon family in Idaho. Never went to school or a doctor. Awful family. Owned by most libraries in US and always checked out. Fascinating quick read.
    Best regards,

    Reply

Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.