Day three in the Big Brudder house… Man, I can’t even do accents when I’m writing them down!
Yesterday ended with a visit from Corinne which was lovely and then hilarious chatter with the other three ladies on my ward. One lady has some dementia issues but had this moment of clarity that was so beautiful it made me cry. She was saying that she’d had an accident which meant she wasn’t mobile and had to exercise and get her legs working again.
She said her husband would help by them each standing at one end of the kitchen counter and then he would sing to her to make her walk into the middle to meet him. Is that the sweetest thing you’ve heard today?
Later on I was listening to her chat with a lady who had taken her hearing aids out. Bloody hilarious!!!!
So this morning was more blood tests, more meds and more pooing in cardboard trays… So glamorous!!
I’m really missing my kids today, which is a surprise to us all seeing as its the end of the summer holidays! You’d think I would be glad of the rest! But I spoke to them all this morning which was lovely and Caroline is taking them swimming today and bringing them up visit tonight. I can’t wait to see my three babies!!
The surgeon came to see me this afternoon. He says that they want to give me two more days on the IV steroids and hope that it settles my colitis, if it does they will book me in for surgery as an outpatient for in the next few months. If it doesn’t then they may want me to go in for surgery in the next week!! Eek!!!
I’m scared but almost relieved. I’m glad that be it in a few days or a few months that I can see an end to the disease. I think that’s one of the hardest thing to deal with IBD. It’s a lifelong condition and the inability to to know how you will be week to week, month to month or year to year makes life so hard. So knowing that they are taking this seriously and that surgery is definitely a viable option makes me see a well searched for light at the end of the tunnel.
He did throw me a curveball though before he left. Apparently there is a ‘controversial’ study that says that an appendectomy can hugely reduce symptoms of Ulcerative Colitis – especially as the main area of my disease is in left side of my colon. He says there is no hard evidence that it works but it could be something to think about and look into. So I can see some major googling from me in the next day or so!
I’m not feeling any better yet which is a worry, the steroids should be helping to relieve symptoms but there’s no improvement yet. Today I had to have some extra painkillers and anti sickness drugs as I was really struggling.
I moved wards today, the ward I have been on shuts down for the weekend so they moved me onto the gastro ward – it’s kind of nice to be around other people who have similar problems.
The kids came to visit which was fab, they wrote me a letter, gave lots of hugs and Ellie even left me Giraffey to look after me! It’s her number one teddy so I’m feeling very blessed! It was lovely to see them, thanks so much to Caroline for looking after them and for bringing them in. I have to admit to a quiet weep when they’d left – I’m missing them so much and it was hard to see them leave.
Also had a visit from my mum and friends Martin and Claire – Martin asked what he could bring for me and I suggested a magazine… I realised you should never ask a man for a magazine as this is what he brought me!
Well at least he made me laugh!! Almost as much as when he asked the nurse her inside leg measurement.
So Ill update again tomorrow. Thanks for reading.
Love Sam xxx