Tag Archive for: quotes

Chronic illness and guilt – when we can, we do

I got a message from someone on twitter today from a mum who is facing stoma surgery.

“You have made a difference. You made me feel ok about stoma surgery, you help me to remember I’m not the only one feeling like this. These school holidays are breaking my heart, I feel so guilty for not doing things with the kids. Thank you for reminding me I’m not alone xx”

I responded telling them that today I’m in bed as all my kids are on computers and though I feel bad about this, I remind myself that when I can, I do.

It struck me that this is a good motto for anyone with chronic illness who is feeling guilty.

 

There is so much guilt in living with chronic illness or disability, it’s wrong, it’s unhelpful and it’s crap but almost everyone I speak to has had feelings of guilt at some time in their lives.

Guilt that they’re letting others down, that they’re not good enough parents, partners or friends. Guilt that they don’t pull their weight with work, guilt for taking time off. Guilt that their houses aren’t tidy enough, their dogs aren’t walked enough. Guilt that they sometimes eat fast food as they’re too tired to cook. Guilt that their kids have to care for them when they want to be caring for the kids. Guilt that family days out get cancelled or become about their illness rather than the fun of it.

Its easy for me to say that it needs to stop, that these things we feel bad about are out of our control and that guilt doesn’t help anyone. But I’d be a hypocrite. Because I feel all these things too.

But I do remind myself that when I can, I do.

When I can take my kids out for the day I do. Yes, it’s sometimes to the cinema as I know I’m not strong enough for a more physical day but I do.

When I can, I work hard, I put my everything into careers that I love.

When I can, my house is clean and tidy (and when I can’t, I hire a cleaner!!)

When I can, I see friends, I think about others, I’m there for them.

Life can be tough, but remember…

When we can, we do.

 

✌?& ❤️

Sam xx

She conquered her demons and wore her scars like wings

I saw this quote today and it felt very apt. It’s been a rough old road at times but I finally feel like I’m conquering those demons and feeling pride in my scarred body.

Conquered demons scars like wings

 

Chronic illness has taken it’s toll on me over the years, there are times when I just feel so defeated. I have this happy and positive online persona and in real life I always try and see the best in any situation but sometimes my heart breaks at the life that has been thrust upon me.

I was once asked at an event, if I could wave a wand and make my illness all go away, would I?

I felt a huge pressure to say no, that I would keep the life I have, but in reality, I would do it in a heartbeat.

sam cleasby so bad ass IBD blogger and writer

I know that my illness and what I’ve gone through has made me the person I am, it’s shown me I’m stronger than I ever imagined, it’s brought a bond with friends and family that can’t be surpassed and it’s also shown me other people’s true colours.

Its led me to having a blog that’s been read almost 3 million times (!) and has given me some amazing opportunities to be on TV, the radio anc in newspapers and magazines all over the world. I’ve spoken at events the length and breadth of the UK and travelled to Spain and soon Germany.

sam cleasby public speaker

Its brought new people into my life who I’d never have met otherwise. I’ve been to parliament. It led me to a job with Scope that I adore. I’ve met Philip Schofield for Christ’s sake!!!

But it has stolen so much from me.

It robbed me of precious hours, days and weeks with my babies. It’s taken it’s toll on my relationship. It forced me into missing days out, nights with the girls, holidays, events. It took my career.

It made me weak and fearful and exhausted. It stole a part of me, both physically and emotionally. It hardened me to the fuckwittery of others (wait, that’s actually a good thing!) but it also toughened my armour and made me push people away.

sam cleasby ibd and children

 

It caused my babies to be stressed and scared, making them fearful yet far too familiar with hospitals. It made them into young carers and forced them to face worries way beyond their tender years.

But we are here and we still stand strong.

Those feelings of guilt, fear, depression, anxiety, anger and a deep sadness that took a tight grip on my soul, all those feelings still linger yet they don’t have a hold over me.

My body that changed so much bears the scars of multiple surgeries but you know, I kind of love it. My scars show my journey, they are the proof that I survived. My ostomy bag is not worn with shame but pride and love and hope.

My demons will be waiting in the shadows for the rest of my life, but I’m finally feeling strong enough to face them, to fight them and to win.

Much love

 

Sam xx

When you feel life is dragging you backwards…

When you feel life is dragging you backwards with difficulties, this quote really hit home today.

when life is tough quotes

 

I came across this today and it made me remember to just stay positive.

 

 

Sam xxx

Johnny Cash – Quotes for Life

You know who was bad ass? Johnny Cash…

He is probably not the first person you think of when you are musing inspirational quotes, but here is why Johnny Cash is like a wise, wise buddha…

Johnny Cash quotes inspirational bad ass

“Flesh and blood needs flesh and blood”

Humans need touch, love and company.  If you find someone special in your life whether it is a partner, friend or general awesome chap, hold them close and cherish them

johnny cash quotes bad ass

This is a good one for us IBD warriors.  We got to be tough, we have to be stronger than the constant shit we deal with every day x

johnny cash quotes bad ass

“Its good to know who hates you and it is good to be hated by the right people”

Dude, someone is always going to hate… Those people, those haters, they aren’t the ones you want around you.

johnny cash quotes bad ass

“I keep a close watch on this heart of mine,
I keep my eyes wide open all the time,
I keep the ends out for the tie that binds,
Because you’re mine, I walk the line.I find it very, very easy to be true,
I find myself alone when each day’s through,
Yes, I’ll admit that I’m a fool for you,
Because you’re mine, I walk the line.As sure as night is dark and day is light,
I keep you on my mind both day and night,
And happiness I’ve known proves that it’s right,
Because you’re mine, I walk the line.

You’ve got a way to keep me on your side,
You give me cause for love that I can’t hide,
For you I know I’d even try to turn the tide,
Because you’re mine, I walk the line.

I keep a close watch on this heart of mine,
I keep my eyes wide open all the time,
I keep the ends out for the tie that binds,
Because you’re mine, I walk the line.”

I couldn’t pick one line from this song as its all so perfect, one of my favourite love songs.  The right person by your side makes you want to be a better person, because you’re mine, I walk the line.
johnny cash quotes bad ass
“You build on failure. You use it as a stepping stone. Close the door on the past. You don’t try to forget the mistakes, but you don’t dwell on it. You don’t let it have any of your energy, or any of your time, or any of your space.”
johnny cash quotes
“Life is rough so you gotta be tough”
johnny cash and june carter
“This morning, with her, drinking coffee” – Johnny Cash about June Carter when asked his description of paradise.
Sigghhhhhhhh <3
So when you are struggling in life, ask yourself one question…
what would johnny cash do
And if all else fails, laugh at this.
johnny cash high
Sam xx

Be more Beyonce

I came across this quote from Kathleen Hanna that was just too good not to share.

Perhaps we all need to care less about what others think, especially others who are just randoms off of the internet?  Perhaps we all need to be more Beyonce…

beyonce sasha fierce

“Beyoncé isn’t Beyoncé because she reads comments on the Internet. Beyoncé is in Ibiza, wearing a stomach necklace, walking hand in hand with her hot boyfriend. She’s going on the yacht & having a mimosa. She’s not reading shitty comments about herself on the Internet, & we shouldn’t either. I just think, Would Beyoncé be reading this? No, she would just delete it or somebody would delete it for her. What I really need to do is close the computer & then talk back to that voice & say, Fuck you. I don’t give a shit what you think. I’m Beyoncé. I’m going to Ibiza with Jay-Z now, fuck off. Being criticized is part of the job, but seeking it out isn’t. That’s our piece to let go.”

beyonce single ladies

 

 

Love Sam xx

15 ways to make your life happy


happiness

1. Make your own happiness a priority.

Your happiness matters.  Everyone, but especially women tend to put other people’s happiness before our own.  We make excuses for why we neglect our needs – we are too busy, too skint, too stressed out.  If you don’t value your own happiness then no one else will.  It is entirely possible to look out for your own needs and still care about your friends and family.  If you are happy, you are more likely to spread happiness and care for those around you.

Think about what makes you happy.  Now what would make me delirious would be to wake late, eat cake, drink wine and spend the day sunbathing somewhere hot and beautiful.  Thats not realistic at this point in my life as I think my kids would have something to say about it!  But what does make me happy is blogging, making pretty things, reading, watching a good film, open fires, sauvignon blanc, walking in the woods with the dog and my family, my chickens, a good meal with awesome friends, a lie in with Timm, going dancing with my friends, a full english breakfast…  There is a LOT that makes me happy that costs little or nothing and that I make time for.  Its easy to neglect your own desires but important that you don’t.

happiness a priority

2. Spend time with people who make you happy

Who are the people you enjoy spending time with? Who make you happy, love, respect and appreciate you and who make you be a better person.  If you surround yourself with negative people then your life will be filled with negativity, and the opposite is true also, being around positive, happy people make you aspire to be positive and happy.

Sometimes we can’t help who we have to spend time with, we may have work colleagues or family members who are Debbie Downers and we have to hang out with them at times.  But in our social lives it is so important to keep awesome positive people around us.  The ones who make us laugh, who are joyous to be around.  Im not saying fill your life with Mary Poppins’, some of the people who make me happy are filthy minded, raucous and quite dark! But they are interesting and make me feel good about myself.

3. Take responsibility for your own life

This is a biggy for me, the trait I hate the most in people is refusing to take responsibility for their own lives.  People who have constant excuses for their bad behaviour, who think it is always someone or something else’s fault.  People who say “its alright for you because…”

Own your life.  Own your mistakes.  Live and learn and move on.  The world doesn’t owe you anything, you make your own path through this world.  Everyone faces hardships throughout their life but you can choose to be a martyr to your tough times or own the shit out of them and move forward a stronger person.

4. Be yourself.  Everyone else is taken

Be the best version of yourself that you can be.  Be true to yourself and be proud of the person you are.  It’s easy to compare ourselves to others, the fact is there will always be someone thinner, smarter, prettier – but honestly? Who cares?  Whatever part of yourself you admire the most, be that more.  The parts you dislike about yourself, be that less…

Be proud of your quirks and weirdness, stand tall and proud and applaud your inner awesomeness!

be yourself everyone else is taken

5. Create your own happiness

No one else can change your life and make you truly happy.  Choose positivity over negativity, smile because you can.  Choose to be happy.  Be happy with who you are right now and allow your joy to shape your present and your future.  Do the things that make you happy more often, spend time with those who bring out your smile and create your own happiness.  If you are waiting for someone else to make you happy, you may be waiting a long time.

6. Find the silver lining

This is a toughie.  When you are going through a really tough time it is easy to slip into feeling defeated and that life is just too hard.  We go through things in life that we think will break us, illness, bereavement, job loss, money troubles, and it can feel like there is no way to get through these times.  The truth is we are stronger than we think.

It is important to look for the silver lining even if that is only the tiniest sliver of hope.  When I was recovering from my bowel surgery and was in pain, I was feeling humiliated by leaking bags and the inability to care for myself.  During  that time I struggled to see the silver lining, but the reality of it was that I was no longer sick.  My Ulcerative Colitis was gone, ten years of illness, pain and medication were now in my past.

If there is no silver lining in your situation, for example the death of a loved one, then try to count your blessings and be grateful of the good things in your life.

When things are hard, and you feel down, take a few deep breaths and look for the silver lining – the small glimmers of hope.  Remind yourself that you can and will grow stronger from these hard times.  And remain conscious of your blessings and victories – all the things in your life that are right.  Focus on what you have, not on what you haven’t.

7. Be kind

Be a kind person, one who is caring and thoughtful, who thinks of others and treats people with respect.  Kindness breeds kindness.  Its a simple one but so important, kindness sometimes is confused with being a doormat – this is bullshit.  You can be a strong person who has a kind and loving heart.

8. Be open

Be open, share your thoughts and feelings with the people closest to you.  If you are hurting then accept the hurt and allow yourself time to heal – let your loved ones in and be honest with them.  A problem shared is a problem halved is a great saying, the act of speaking your troubles out loud can be of as much help as any advice you can receive.  Becoming a more open person can lead to real happiness.

happiness is chickens

9. Let go of the past

Our pasts define who we are and we can learn lessons from the things we have gone through, but when your past is keeping you from moving forward it becomes a problem.  We have all had tough experiences but if you are reliving the pain of this experience again and again and it is affecting your present then it is time to let go.

Letting go doesn’t mean forgetting what has happened or pretending it didn’t happen, it means letting go of the pain and resentment that is holding you back.  This is easier in some situations than others, but be honest with yourself and if something from your past is affecting your present then it may be time to talk through those issues either with a trusted friend or family member or a trained therapist.

let go of your past

10. Take a chance

Last December my husband and I took a leap of faith, we sold our home and rented a 15th century mill to push our photography business forward.  It was a risk, but a calculated risk.  I knew that if there was a motto to live by (other than ‘If you can’t sing well, sing LOUD’) it was ‘I’d rather regret the things I did, than the things I didn’t do.  We plotted and planned, did the sums a million times and then decided to take a chance.  And it was the best thing we ever did, don’t get me wrong there have been some very tough times but throughout the year I knew we had made the right decision.

Life is not about getting a chance, it is about taking a chance.  If there is something you have always dreamed of doing, then try to make it happen.  If it works you will have achieved a goal, if it doesn’t you know you at least tried it and you WILL learn a lesson from it.

regret quotes

11. Be mindful

Live in the present, in the here and now.  It is so easy to let busy lives, technology and procrastination take over our lives, but being mindful of the things around you can bring peace and happiness into your life.  Take time to notice the things that are important in your life right now, experience life as it happens.  Don’t dwell on the past or imagine how great things could be in the future.  This moment is the only thing guaranteed to you in life, we never know what the future holds so enjoy today.

mindfulness

12. Concentrate on the things you can control, not the things you can’t

Worry and stress is a normal part of life but when your day is taken up with worrying about the things in life you cannot control it is a sign that things need to change.  Worrying about things that are beyond your control is such a waste of your time and emotional energy.

Worry affects you, not the person or situation you are worrying about.  If it is important to you and you can control the outcome and positively help a problem then great, if not then let it go.  You have enough genuine problems to face in life without upsetting yourself with things beyond your control.

13. Face your problems and make a positive change

There’s no point in burying your head in the sand, if you have a problem you need to face it head on and make a positive change as no one is going to do it for you.  The problem will not just disappear on their own without action from you, no problem is too big to overcome.  It takes acceptance from you and then a plan, no matter how small the steps you need to do little and often and move it forward.

Some problems you will be able to overcome alone with a good old fashioned list and a bit of hard work.  Others are bigger and need support from others.  There is no shame in asking for help, whether it is the help of friends, family or a professional.

14. Appreciate the things you have

Perspective.  There will always be someone better off than you and someone worse off than you.  Learn to appreciate the things you have rather than worrying about the things you don’t.  Im not saying we shouldn’t aspire to be greater than we are now, but just not to be so busy in thinking of the things you don’t have that you forget to appreciate all you do.

15. Love those around you

Appreciate and love those around you, bring joy to the people who mean the most by telling them how much they mean to you.  Since my sister moved to Australia I end all our conversations with “love you!” I didn’t do this before she left but her moving half way around the world brought out something in me that makes me want her to know how much she means to me.

This isn’t about huge grand gestures, it is about personal, meaningful acts that let your friends and family know how awesome they are.  A text message, sending a photo that you think they’ll find funny, a hug, a few words.

Love Sam xx