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Prednisolone – Steroid withdrawals

I am finally off the evil steroids! Hooray!!!  I have been on Prednisolone since June this year and have finally managed to taper off them.

But man, Im having a few problems.  Mainly in the form of horrible headaches.  I just can’t shake them, Im taking pain killers but they don’t want to go.  At first I thought I had some sort of bug as Im also having a lot of nausea too.  But now Im thinking its steroid withdrawals.

prednisolone withdrawal

“Steroid withdrawal symptoms can include dizziness, fatigue, intestinal upset, and headaches. These may occur as the body adjusts to the reduction in steroid supplementation and starts making its own steroids. Patients on steroid medications for even a few days can go intowithdrawal when they stop. It important to start and stop the drugs under medical supervision, to limit the symptoms and decrease the chances of serious complications during withdrawal. People stopping high dose medications could develop a medical crisis.

One of the most common symptoms of prednisone withdrawal is a feeling of weakness or severe fatigue. This is because the immune system is weakened. It may also result in body aches and a low grade fever as though a cold were coming on. Joint pain is also common. Also on the list of prednisone withdrawal side effects is depression. This is because withdrawal from the drug causes hormonal changes in the body. Also because of the hormone changes, a woman who comes off of prednisone too quickly may experience side effects concerning her menstrual cycle. It may become temporarily irregular.”

prednisolone withdrawal headache

Great! I have been looking forward to coming off the meds so much, and now Im dealing with withdrawals!!  On a good note, I sleep really well last (without sleeping tablets!) so Im hoping that the insomnia is on its way out.

Well here’s hoping they are short lived and Ill be back to normal soon.

 

Love Sam xx

Day one in hospital

Thought I’d blog my hospital journey this time.

This morning I called my consultant to let him know that despite him upping my pred steroids on Thursday that I had got worse over the weekend. He asked me to come into hospital “with a view to being admitted” Obviously I heard this as “come in for a test and then you’ll be able to go home!!

So after a bit of a stress to sort the kids as Timm is working away from Wednesday morning till Thursday night (he’s GOT to go, it’s a super important meeting that could mean great things for us! I told him he had to go!!) Eventually sorted the kids to go to my lovely cousins house for a sleepover tonight so Timm could bring me and get me sorted in hospital and then my wonderful friend is having them whilst he is away. If you lot are reading this, you are awesome and such a huge help xxxx

So I came in, had obs done and then saw the drs – she adviced that I went on IV steroids. This means a 5-7 day stay in hospital. She also added in some other meds to try and stabilise this flare.

A week in hospital is pretty shit but if it can get a hold of the flare and get me settled it will be worth it.

The staff here are amazing. I’m actually shocked at the difference in attitude and care compared to my last hospital. All the nurses, doctors, porters and staff have been so kind, cheerful, compassionate, funny and wonderful. I’m so not used to be treated so well in hospital!! Good work Sheffield Hallamshire!!!

Laying in bed all day gives you time to people watch. It’s brilliant! There’s a lady on my ward that always on her phone. She starts every conversation with “what you had for dinner/tea?”

There’s a staff member who has frankly the most amazing moustache ever, it’s a tash beard bare chin combo going on… I’d love to get a photo and blank his eyes out but I’m fairly certain he could kill me with one batfink karate chop…

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As nice as all the staff are, it sucks to be in hospital – I miss Timm and the kids. I’m stressing that I was going to buy school uniforms and shoes this week and take them for haircuts!!! Timm is stepping in and doing it all though. Im a tiny bit scared to see what they end up looking like but I’m sure it will be fine!!

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You get an amazing view across Sheffield from here…

Please feel free to leave comments or questions!

Love Sam xx

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