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I was talking to another j pouch-ee yesterday and she said something that struck me as so true. You wake up and think you could take over the world. Then you try to get up and your body says “no way, you are 90” You see, one of the hardest things about chronic illness is […]
I’m going to warn anyone who cringes and faints at the mention of “wimmins problems” to step away right now as this post probably isn’t for you… Still here? Good. Let’s talk menstruation! Now since my surgery to create a j pouch, things are, well, different down below. I suppose it is to be expected, […]
What a year it has been! On 3rd September 2013 after over a week in hospital being pumped full of so many drugs, the decision was made that I needed to have my colon (my large bowel) removed. And so I was wheeled into surgery and this whole roller coaster began. I was cut open […]
I got an email from 23andme who are doing a huge study on the genetics of ulcerative colitis and crohns. Read this from their website. “At 23andMe, we believe genetic data plays a critical role in research. Knowing more about how genetics relate to a disease can provide additional information on how people might respond […]
I’ve been to see my lovely consultant Mr Brown today and all is good! I have a huge grin on my face because currently my pouch is working brilliantly, my next check up will be in May 2015 and there is talk of discharging me… I have been under a consultant since 2004!!! I am […]
We all want the very best for our kids, we want them to be happy and healthy. But what about if you have a child who gains weight easily? How do you best broach the subject without making their weight an issue? One of my three kids gains weight easily, all three eat the same […]
In September this year, my husband Timm and I are renewing our wedding vows after being married for ten years and together for sixteen years! We married in May 2004 in Las Vegas, we had originally planned a big white wedding at home, but the stress of everyone else trying to dictate our day just […]
This is from Denise, who is looking for 200 Ulcerative Colitis patients to participate in a 30 minute on-line project from 14th July – 15th August. • All patients must be aged 18+ • All patients must be diagnosed with UC and have had surgery for it • All patients must NOT be diagnosed with […]
I ‘speak’ to lots and lots of people online about colitis, crohns, ileostomies, j pouches and alllllll that comes with IBD. I think it’s really important to have the opportunity to talk to other people who have similar experiences to you. There’s nothing worse than feeling totally alone and that no one understands what you […]
Tramlines is a city centre festival in the great city of Sheffield, it’s an amazing thing and my lovely husband Timm is one of the festival directors and the production director so each year I’m lucky enough to get a little pass that allows me to hang out backstage and have a generally fantastic time. […]