Posts

Codiene, Jpouch and doctors with funny names

I saw a new dr on Thursday, a registrar on the team of fabulous medics who have been looking after me. As you may know, my surgeon is called Mr Brown, we do laugh that he has an appropriate name for a bum doctor… Well, the new one was called Dr Liu. Dr Loo?! Are they kidding?

When they become a doctor do they choose the funniest name they can think of that relates to their speciality? Did I mention my friend’s dad (he has an ostomy too) whose doctor is Mr Butt!

Or is it like Harry Potter’s sorting hat? When you start medical school do they match your name to the most appropriate category?

Anyway Dr Liu was very nice, he talked through my camera test which showed a very small amount of inflammation but not enough to be causing me so many problems. The Coeliac test hasn’t come back yet but all other blood tests are normal. This is great to know there’s nothing majorly wrong but a little annoying as it means there is no easy treatment.

I am going to the toilet around 15 times a day, sometimes as many as 20, I have talked before about how it is normal for someone with a pouch to go multiple times a day but this is very excessive. Since the op I take Imodium every day to slow the output.

The doctors have added in two more drugs to slow everything down. The first is fybogel which thickens the stool and therefore makes the passage through the body slower.

The other new drug is codiene. Though it’s used as a painkiller, a side effect of codiene is constipation and so I’ve been put on quite a bit of it. I’m now taking 4 Imodium, 2 fybogel and 8 codiene a day. I wasn’t sure at all about taking so much of a string painkiller but after 2 days it seems to be working!

On Friday I went to the toilet just 7 times in 24 hours and then amazingly I slept through the night last night!!!!

Woooohoooooo!!!

I can’t describe how good it feels to have had a proper nights sleep after so long of waking at least a couple times a night.

The only issue is that codiene are strong painkillers. I’m feeling very sleepy and foggy headed and so the codiene isn’t going to work long term for me as I don’t feel able to drive or do much at all when I’ve had the tablets.

The plan is to try this combo for 6 weeks then go back and see the team. If things aren’t settled by then, we will reevaluate.

Thanks so much for the lovely messages

Sam xx

Illness and Ileostomies

Last night I started with a stomach bug, I felt queasy and then the output from my stoma turned to water. My bag was filling extremely quickly, I was emptying once or twice an hour and I felt awful.

I had a google and thought I’d try some Imodium (loperamide) to deal with the very watery output from my Ileostomy. I went to bed after puking with a hot water bottle and feeling sorry for myself. I had stomach pain and felt awful. I was a little worried that it could be a blockage, but from dr google I realised that even if it were, the best things to do were drink hot drinks, massage my stomach and try different positions to sit and lay.

I woke this morning after a really restless night feeling terrible. Still awful diarrhoea, nausea and stomach pains. But worse than all that was my mood. I just felt so down, like this was a setback in my recovery. I don’t think I’m generally one to feel sorry for myself but today I’ve been such a Debbie Downer…

eeyores gloomy place

I hate feeling sick. I’d rather have pain that nausea, that queasy feeling is the thing that drops me to my knees. So today the nausea teamed with tiredness, a leaky bag, soreness and pain has made me a proper mardy arse!

I try to keep chipper through all this but this has knocked me, I’m feeling low and fed up. Tonight we were meant to be having a few friends over, a bonfire, fireworks, good food and sparklers! Instead we had to cancel and Timm had taken the kids to the local bonfire, so I’m sat at home listening to other people’s fireworks feeling pretty sorry for myself.

feeling ill and miserable

The plan is Imodium, plenty of fluids and rest. I’m hoping it will be over soon and I’ll be feeling better. Sometimes we need to go to bed with a hot ribena, a hot water bottle and have a little pity party.

And so I’ll do that, and then pick myself up, shake off the grumpiness and smile…

Sam xx