Tag Archive for: social media

Do you follow me in other places around the web?

I love that so many of you read my blog here at Sobadass, get in touch and comment on my posts. It’s such a joy to know that there are people out there when I am sat typing into the ether! Do you also follow me on my sobadass social media channels? If not, it would be amazing if you could drop me a follow.

Facebook

You can find me on facebook here. Even though my kids tell me that facebook is only for oldies, I love it over there and would love to see you over on my page. It is a good way to catch me if you want to chat as I am on there a lot.

photo of the sobadass facebook page

Twitter

You can find my twitter page here. If you want to tweet at me or share links, your favourite things, what’s happening with you etc then follow me there.

twitter profile for Sam Cleasby

Youtube

I have created quite a few videos over the past few years. You can find them on my youtube channel, hit subscribe and you will be first to know when another goes on there.

selection of videos by Sam Cleasby So Bad Ass

Instagram

I keep getting told that I should have a ‘professional’ instagram page where I only share edited, glossy pics. But that’s just not me! So if you want to see a mix of what I had for dinner, selfies, pictures of my chihuahua and general Cleasby family nonsense, then follow me on instagram today.

Drop me a hello on any of these platforms so I can say hi and we can chat!

Peace and love

Sam xx

I did something awful

Recently I did something really awful, something I’m quite ashamed of and that I really should know better. I judged someone on their social media and their chronic illness. I saw someone posting about going out to a social event and thought “Oh, I thought this week you were really ill?!”

Someone I see on social media has an invisible and chronic illness and shares their life to educate others about the impairment. They had been posting a lot about how difficult a time they are having and then I saw a photo of them heading out to a really busy social event. And I judged them.

I’m embarrassed about this and I’m not writing this post to make any single defence. But to talk about how we all can sometimes judge others even when we truly do know better.

Feeling judged? I should know better

I publicly share a lot of my life, the highs and the lows of life with a chronic illness. And I have been judged many times. People making comments about me going for dinner when I have said I’m struggling with fatigue. Asking how come I can manage to go to a festival when I have shared my pain levels. People just openly telling me I don’t look sick with a suspicious stare as if I’m making it up.

So I’m shocked and ashamed of myself that I had this thought. I wondered how they were going to manage going to an event when all their posts that week had been about extreme pain and inability to walk. How very dare I?

Because the reality is that you have no idea what someone is going through by just looking at them. And when you feel judged, it just makes life feel worse.

I have managed to work a full time job whilst living on painkillers with horrific pain, insomnia, depression and awaiting surgery.

I have been on a night out despite feeling like death because I was fed up of letting friends down so much and not wanting to cancel. I’ve shit myself on a night out, cleaned myself up, changed and then smiled for an instagram selfie.

On my wedding renewal day, I was bleeding from my jpouch so heavily that I had to wear a pad. Yet my photos wouldn’t give that away.

timm and sam cleasby wedding

Festival and travel

I’ve been to festivals whilst being desperately unwell because I didn’t want to lose the ticket money and ruin other people’s plans.

I’ve travelled the world whilst recovering from major surgery, feeling terrified, fragile and had to carry a case filled with medication. On one trip I had to inject myself every single day into my stomach. But my holiday photos don’t tell that tale.

india with an ostomy taj mahal in a wheelchair sam cleasby travel blog judged

I have had people write comments on my social media criticising my for these things, saying I don’t look sick. People saying to my face or online that if it were really as bad as I say, then I wouldn’t be having a social life like this.

And it’s a crippling feeling of judgement, a weighty slump of worry. Not feeling believed, supported or understood. It’s devastating.

So I have no idea why this mean spirited thought popped into my head when I saw someone doing something fun despite their illness. I can only say that I didn’t comment to them or to anyone else and as soon as I thought it, I caught myself and gave my head a wobble.

Perhaps it was jealousy more than anything (not that it makes it ok). I’m 5 weeks post op and still in an awful lot of pain. I’m exhausted all the time and though I’m getting better, it’s still really tough. And maybe I just wished I could be doing what they were.

Be kind yo

I suppose the reason for this blog post is a reminder that sometimes we all can judge others unfairly. That we can think the worst and make unwarranted and negative assumptions. But those thoughts and assumptions are on us and we all need to remember that everyone is fighting their own battles and you have no idea what they are.

If you find yourself judging someone else on something that you have no idea about, then keep it to yourself! And then think about the damage those negative comments can make to another person.

We have all done it. But if we’re aware of how wrong it is, then hopefully we can make the world a little kinder.

Be kind quote everyone is fighting their own battle

We seem to live in a world where social media tells us we can never make a mistake. We can never slip up, say or think something out of character. The truth is we all fuck up from time to time, but if there is no room for self recognition and allowance to learn, educate yourself and make positive changes, then where are we left?

To err is to be human, and in my poor thoughts I have realised that we can all mess up. I’ve been judged in the way I judged someone else. And it made me realise that maybe we need to speak up a little more when we do something wrong. And maybe society and social media need to be more open to allowing people to make amends for their mistakes?

✌? & ❤️

Sam xx

Reaching 8000 followers on Facebook!

I’m so thrilled to hit the 8k mark on Facebook!! For me, I love the communication and the feedback I get from my readers and so I love it when you follow me on social media and get in touch!

I try my best to reply to every person (apart from those weird ones who show me their willies or say mean things!) who gets in touch.  I get hundreds of messages and so if you are reading this and wondering why I didn’t get back to you, there is a chance that I missed it so please do try again.

sam cleasby ileostomy colostomy bag blogger body positive so bad ass

If you don’t follow me on Facebook, do head over and click like.  I am on there most days, so stop by and say hi!

You can also follow me on twitter, instagram and youtube.  I have a snapchat, but to be honest I never use it apart from to take pictures of me looking like a puppy and saving them to my camera roll!!

Thank you all for the wonderful support

 

Sam xxx