Entries by sam

My beautiful scars

I have a lot of scars, and with another surgery planned in the next few weeks, I will have a few more too…  I am not ashamed of them, they are the signs of my IBD journey, the battle scars of my fight of the last ten years. My family is half Indian, and so […]

Dating older men – The Kylie/Tyga furore

I don’t watch The Kardashians, I am not a fan of Tyga, (I’ll be honest, I had no idea who either Kylie or Tyga were before yesterday) yet I found myself googling them after my twitter feed became filled with a slut shaming, paedophile questioning bitchfest. So, incase you too are in blissful ignorance of […]

To the woman who tutted at me using the disabled toilets…

Dear lady who loudly tutted at me using the disabled loos, I know you saw me running in, with my able bodied legs and all. You saw me opening the door with my two working arms. You saw me without a wheelchair. Without any visible sign of disability. You tutted loudly as I rattled the […]

Hernia surgery update

I have been awaiting a date for hernia surgery, I am hoping this op is going to set me back on a healing path. My hernia isn’t large but it’s uncomfortable every day and is stopping me doing the things I want to do. Anyway I heard from my consultants secretary this week. Mr Brown […]

Chronic Illness and Parenting – am I a shit mum because of my shit disease?

I’ve been thinking a lot about how my illness has affected my children and the relationship between us. I have three kids and every day they amaze me with their intelligence, kindness, character and awesomeness. Till 2010 my husband’s job took him away from home for up to nine months of the year. So my […]

Debbie Downer

Things aren’t brilliant at the minute.  I’m still really struggling with fatigue, I am so exhausted all the time, and this brings my mood crashing down, I feel sad, guilty and useless.  I am still waiting for a date for my hernia operation, the hernia isn’t too big but it aches constantly and I have […]

Life with chronic illness – what it's really like

“Get well soon!” That’s just one of those every day sayings right? But what if you have an illness that you will never get better from? The worst part about having a chronic illness is that it is a life sentence, unless there is some miracle cure, if you have a chronic illness, it will […]

Bloody hell! Why don't we talk more about periods?

Tennis player Heather Watson has sparked a debate on menstruation recently when she explained in a post match interview that her performance wasn’t up to her normal standard because she was on her period.  Though she actually said “I think it’s just one of these things that I have, girl things.” Girl things, Aunt Flo, monthlies, having […]

Tired, emotional, guilty

I’m so tired. And the tiredness leads to anger, hurt, guilt. I have no idea whether fatigue is something I just need to accept? Whenever I mention it to the doctors they look at me like I’m daft. “You’ve been through a lot” they say, “give your self a break”, “it all takes time”. Perhaps […]

Harry is back… Hernias and J pouch

So do you remember that when I had my stoma I also had a parastomal hernia that I named Harry?  Well, Harry is a tenacious little sod and even though I my surgeons fixed my hernia during my Jpouch Surgery he is BACK… And so I am gutted to say that my resolution to have no surgery […]