I have this friend. Her name is Fenn. (It’s not, she’s known by all manner of names, but to me she is Fenn.) We ‘met’ online over 10 years ago on a website called The Bad Mothers Club. It was pre Facebook, pre Twitter, pre Facetiming, skyping and instagram. A vine was still something that […]
1. I don’t need your sympathy but I do need your understanding. 2. Don’t be embarrassed. If you have a question, just ask! 3. It’s not you, it’s me. Please be patient when I can’t make events/cancel last minute/don’t return your calls. 4. Needing help and support is not easy to ask for, but know […]
After years of complex health issues, multiple surgeries, too many medications to name and months in hospital, I thought getting a flu jab would be a simple, fuss free event. It started when a nurse in hospital clinic asked in passing whether I had had my flu jab this year. I said I had never had […]
On 4th November this year, I had the honour and privilege of going to Parliament with Crohns and Colitis UK to speak to MP’s and Peers about life with IBD. It was a fantastic experience that I will never forget and I hope to repeat again. Raising awareness and being a health advocate is everything […]
I am a big fan of the charity Scope and have been lucky enough to work with them this year on their End The Awkward Campaign. As part of their A-Z of Sex and Disability, I was proud to be their ‘I’ for Intimacy, where I discussed the challenges faces by people who have an […]
That’s me!! I am a finalist in the Blogger’s Lounge Blogger of the Year Awards in the category of Charity & Social Blogger! From many entrants, I have been shortlisted and am 1 or 5 finalists. Woo hoo!! I am having a tough time with my health right now and so this has really boosted […]
“So the decision is made? I’ll book you in for another ostomy” Yep, the decision is made. This journey that started 2 years and 2 months ago when I had my colon removed and an ileostomy formed, is coming full circle and in early 2016, I will be going back under the knife and having […]
Hello you lovely lot. Firstly thank you so much for all the beautiful, supportive and caring messages I have received on social media, email and text. I was feeling very sorry for myself and your words really brightened my day. So I am back in hospital, I saw Mr Brown in clinic on Tuesday and […]
I was talking to a friend who has a young baby and we were discussing how tough breastfeeding can be in the early days. She was saying that she has times of thinking about stopping breastfeeding but had some great wisdom that I have been thinking about recently. She said “I may stop, but not […]
So I still have pouchitis. For those who aren’t sure what this means, pouchitis is inflammation in the pouch that was formed from my small intestine. “Patients with pouchitis typically present with bloody diarrhea, urgency in passing stools, or discomfort while passing stools. The loss of blood and/or dehydration resulting from the frequent stools will […]