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Over the past month I have been very unwell in hospital after a big surgery. I have been so lucky to have lots of friends supporting me. So I thought I would write about how you can help when visiting a friend or loved one who is in hospital. It can be really hard when […]
After my latest surgery, my bowel didn’t wake up for two weeks and I ended up having an NG tube. I feel quite lucky that it was my first one and I have had Inflammatory Bowel Disease for over 16 years. So I thought I would write a post about it. An NG tube is […]
This post is about having botox injections for abdominal reconstruction due to hernias. I would like to start this by saying that I have no medical training and this post is just a patient’s view of going through this procedure. If you have any questions, then you should speak to your doctor. Botox injections After […]
Hello you lovely people, Firstly, apologies for not being about for a while, it has been a tough couple of months and I just. haven’t been in the right head space to blog. We moved house on the 13th December which was manic just before Christmas, I left my job at Scope and I got […]
Grief is devastating. And if you have had a pet, you will understand that they are your family. I am going to attempt to write this tonight whilst I have the strength. Our lovely 12 year old pup Lola is heading towards the end of her life. Tomorrow we take her to the vets in […]
Before I get out of bed, I can do ANYTHING! When I wake up in the morning, before I stand up, before I even sit up. The world is my oyster and I can do anything I desire. Before I stand and the pain starts , I am queen of the world. This morning, I […]
Something that I have learnt over the past few years is just how tiring it is to be in pain. When you have ongoing, daily pain, it takes up so much energy both emotionally and physically. I don’t think people really understand just how exhausting it is to live in pain. It is so hard […]
You may have seen this week on social media that I have been for a CT scan this week and so I thought I would do a quick update. I believe the hernias are back. I don’t really want to admit that out loud but I think there is something wrong. I am in a […]
Six years ago today, I had my colon removed and my first ileostomy formed! And what a ride it has been since then!! You can read that first update Timm made after the surgery here, it is weird to read back. We were both so naïve and knew so little compared to now! What has […]
I talked a bit about my Glastomadrama at Glastonbury. It was pretty stressful even though it did all end well. But I thought I would just share a few photos as we had a really lovely weekend. I was unsure as to whether we would make it at all as it was only 7/8 weeks […]