Are you ever embarrassed to talk about your illness?

This is the question my daughter just asked me. My answer was yes. Sometimes.

But I talk about it anyway to stop the embarrassment for other people. The more we talk about ulcerative colitis, crohns, stomas, pouches and just poo in general, the less it will be a taboo or something to be embarrassed about.

People don’t like discussing matters of the arse do they? And this is the reason that people will suffer needlessly in silence when they begin with symptoms of the bum variety.

keep calm and talk shit ulcerative colitis and ibd

I understand those feelings but want to fight against them. Sometimes a mum at the school gate will say she’s read my blog. My mind works furiously thinking about what I’ve written about the past few days! And then I smile and thank them, for every person who reads may just have learnt something. Maybe I changed their thinking about something? Maybe I have taught them a way to have a discussion with someone else who has a chronic illness. Or maybe I just made them laugh.

Whatever their thoughts I am grateful that my website has delivered a message to so many people. It means so much to know I’ve had over 40,000 views in the last few months.  I get emails from all over the world from people telling me I helped them.

And so when the embarrassment begins to creep hotly onto my chest and face, I think about the people I have helped and that embarrassment becomes pride.

talk about poop ulcerative colitis ibd stoma pouch

This blog, my writing and public appearances, the photographs and the hours I put into developing programmes to help kids with body confidence and self esteem, all of that stuff gives my illness a purpose. And that makes things a little easier when I’m ill, exhausted, taking meds, having surgery or recovering.

I hope if nothing else I am teaching my kids to never be ashamed of their bodies. To embrace all parts of themselves and to be proud of themselves no matter what journey their bodies take them on.

Thanks for reading, please feel free to share this and join me in the fight to stop poo being taboo.

Love Sam

0 replies
  1. Kenzie - Motorcycles, Books & Fructose
    Kenzie - Motorcycles, Books & Fructose says:

    It can definitely be embarrassing to talk about UC. I had to explain to my tattoo artist what it was and what the major symptoms were this past weekend. I was slightly embarrassed about it since I don’t know the guy that well but me explaining it to him went well which was nice.

    I really enjoy reading your blog! Keep up the good work 🙂

    Reply
  2. Kenzie - Motorcycles, Books & Fructose
    Kenzie - Motorcycles, Books & Fructose says:

    It can definitely be embarrassing to talk about UC. I had to explain to my tattoo artist what it was and what the major symptoms were this past weekend. I was slightly embarrassed about it since I don’t know the guy that well but me explaining it to him went well which was nice.

    I really enjoy reading your blog! Keep up the good work 🙂

    Reply

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